I lived with my friend M (name withheld) for just under a year, and in that time I learned more about her body than I ever wanted to know. No, it was not a sexual relationship - we were just friends. However - when she was between the ages of 10 and 14, she underwent many surgeries and procedures - all dealing with her digestive system. She nearly died. One surgeon cut a wrong nerve, and ended up severing all feeling to her bladder, and most of the feeling in her sexual organs. I could go on for pages with the horror of what she's been through - mostly because she had a great need to share her narrative.
Her narrative was rather interesting, though, because she often "told" it with her visual art. I went to a show she did - and I was really blown away. She had an entire wall installation of illeostemy bags, and some amazing hand-stitched fashion-forward covers for them. She had an installation of toilet seats, cast of ceramic, with random people's toilet thoughts written right on them. Again - I could go on - but let's just say that I was impressed.
This book showed me that M's story is a Quest Narrative. She knows that she will never be back to "perfect health" - she has had permanent damage done to her body. She is truly amazed by her experiences, and almost grateful for them. As much as it can get frustrating when a friend obsesses on a topic (or themselves in general) I could not help but be impressed by this positive attitude.
I realize that my narrative here is not my self-story. I have a self-story about illness, I suppose, but it's just not as good as M's. I tend to dislike talking about my pain - it makes me feel weak and needy. Especially when serious things are happening with my body - it is usually something I try to deal with on my own - or I surround myself with people and drugs that can help me forget my predicament.
This book brought up some excellent points about ill people, however, I wish it was a bit easier to read sometimes. Brian, in his blog, kind of writes about what I mean. He uses some weird, highfalutin language to describe what seem to be basic concepts - he almost masks them with obscure language.
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